Monday, 7 November 2016

Trust

Learning to listen to trust my voice.

For the majority of my life I've been told I'm doing it wrong (it being any number of things) by lots of different people who think they know me better than I know myself. It's frustrating, exhausting and makes me constantly second guess and doubt myself. I grew up thinking I was wrong and defective- it was so detrimental and soul destroying. This is something I've been thinking about for awhile and remembering all the things I've been told I'm doing wrong throughout my life by different people. It is hurtful and upsetting. I get angry when I think about how many times I have been invalidated, undermined or told I am doing it wrong.

Throughout this year I've been slowly learning to listen to my own voice and trust my instinct with things and I've never been happier. It's a good feeling. I've also limited contact with professionals which has really helped. For once I haven't been told over and over that I'm doing it wrong. It's a relief. It is liberating. I finally feel at peace with myself, that I am doing the right thing. I am learning to trust myself, to feel confident in my decisions and life choices. 

Tuesday, 18 October 2016

Before diagnosis

I wrote this for an e-magazine (now defunct) a couple of years ago which is so it was never published. I finally got around to publishing it on my blog.

Before I realised I was Autistic. I was already doing things which helped me cope, these things helped me cope as an undiagnosed Autistic. I used written communication as much as I could instead of speaking verbally to people. I remember writing letters, emails and dot point statements to help me communicate myself articulately to people. My mind often went blank in situations of stress and anxiety. I knew I was much better at written communication, so I used it as a way of communicating with people. It was only once I was diagnosed that I was truly able to embrace my preference for written communication and got involved in the Autism community where written communication is the norm.

I remember being very socially avoidant especially if the social event was likely to be unpredictable and go longer than I could cope with. I limited how much socialising I did, to twice a week or so. This varied depending on my level of coping. I would be exhausted after the social event and have to recover. I remember feeling like the odd one out as a result and others saw me as anti-social and rude. I hated myself because I couldn't cope socially. This happened time and time again. I did enjoy socialising but reached a point where it was too much. I would get grumpy and easily irritated at the social outing. I did not know why. I felt like others saw me as rude and ungrateful for their company. I felt I drove people away as a result. It was upsetting. I liked socialising and enjoyed the energy I felt from others whilst I was socialising, at the same time I found the experience intense and overwhelming. I could feel all the tensions and energy in the room from all the people and this would become acutely painful after a time.

I distinctly remember sitting in my room (while I was at Uni) watching my mobile phone ring as one of my friends called me about going to her party. I had texted her to cancel my attendance as I was not up to going. I could not face talking to her as I knew I would be pressured to go to her party. I did not know how to explain myself or put up a boundary so I avoided dealing with it. I felt so much guilt for doing this, but I did not know what else to do. I believe this led to loss of friends which I found heartbreaking. I used avoidance to cope which I disliked doing. I did not know what else to do to cope. I know how to deal with it now due to understanding myself better.


Somehow I managed to do a full time BA/BTeach degree and manage socially but not without lots of insomnia, stress, anxiety, illness and tears/meltdowns. It was difficult, overwhelming and exhausting. I ended up having to drop the teaching side of my degree after two years. I didn’t cope with the full load. I completed the BA (Visual Communication). It was the art side of my degree which kept me going. Art was and is my passion. I find it very therapeutic. It took me a number of years to complete my teaching degree (part time long distance), but I did it. It was worth pursuing my degrees.

I learnt darkroom photography in high school, it opened up a whole new world. I was amazed and obsessed with photography. I loved watching the photo develop in the developer fluid, it was a visual stim for me. Such an amazing thing to watch. It never ceased to amaze me how a blank sheet of photo paper could produce such a beautiful image. I understood how it worked, of course but the sheer beauty of watching an image come to life had me hooked from then on! I spent as much time in the darkroom as I could. It was a beautiful, dark (low light) and quiet environment away from the business of the world. I remember many times stepping out of the darkroom back into the world and desperately wanting to go back. The world seemed so much brighter, noisier and more chaotic than I last remembered.

When I was in high school I came across a book in the library quite by accident. I borrowed this book, it was called 'Wise Highs' by Alex J. Packer. It changed my life. I remember looking through it and coming across a section on sensory deprivation. I was intensely drawn to the idea of sensory deprivation. I longed to try it out, but did not have a wardrobe big enough and I couldn't figure out how else to do it with privacy with the rest of my family around. I put it away in my mind to refer to when I had a chance to try it out. Fast forward a couple of years and I'm in my first year of University. I'd left home for the first time. I was struggling to cope with all the changes, struggling to adapt and manage on my own. I had recently moved out of an abusive boarding situation into a house with other women my own age. The room I rented had a big roomy wardrobe. I remembered reading about sensory deprivation from 'Wise Highs,' and decided to set up the wardrobe as a sensory deprivation space. I got excited because now I was finally able to try it out for myself. I set myself up in my wardrobe with pillows, blankets and ear plugs. I forgot the world exists. I let go of everything. I let my mind drift and dream. It was a relief to hear and see nothing. To escape from the busyness of the world. It was very peaceful and calm. I stayed in my sensory deprivation space for a decent amount of time. I can't remember exactly how long. I emerged feeling peaceful and ready to face the world again.

Since that first time of trying sensory deprivation, I have set myself up a sensory deprivation chamber using various wardrobes wherever I have lived. I craved it. I longed for it. Since my diagnosis of ASC and fully understanding of myself, using sensory deprivation makes so much sense. I instinctively knew what I needed before I understood (I knew I was different, I just had no idea why) my neurology and did what was best for me. It helped me cope and face the world again many times. I am so grateful that I accidentally found 'Wise Highs' in my high school library all those years ago. I have now bought myself a copy of the book as it has other great stress relieving ideas.

I remember experiencing meltdowns many times and having no clue why I did it or what it was. I found it so embarrassing when I lost control of my emotions so easily. I felt my difference to others intensified in those moments. I did not understand why it happened. I tried so hard to stop myself, to control it, but I always failed. I felt intensely raw and exposed whenever I lost control, but I always felt better after having released everything emotionally. I figured it must be good for me. I gave up controlling it after awhile and started embracing that I experienced the world in an intense, real way compared to others. I thought I was one of the few real people in the world as most people around me seemed fake. This was my explanation to myself which made the most sense. I felt intensely drawn to people who gave off a real vibe. They gave off a different vibe to others. Unfortunately, they often did not reciprocate. I felt like I was in a desert without real connections at times, at times there would be brief moments of intense, amazing connection with a person but it was rare. I thirsted for it and became obsessed with finding connection in others. I became obsessed with finding the perfect friendship. This unfortunately came across as desperate and clingy, so I would often end up feeling alone and unwanted.

I processed social events with my Mum before I met Atrus. She was very understanding and helpful. I remember her advice to me was to ask people lots of questions about themselves and their lives, as people like to share things about themselves. The idea was to keep people talking so I didn't have to talk as much.

I remember spending many hours talking with Atrus, my husband after a social event analysing and processing it together to help me understand where I went wrong and where I could improve. He would point out things I hadn't realised I had done and then I would get upset.

I spent a lot of time analysing social interaction and trying to understand why people what they did. I perseverated on it. I have experienced broken friendships, people have cut me out of their lives for no apparent reason. It was very hurtful and confusing for me. I felt strongly drawn to certain people. Now I accept and understand people are unpredictable and, it is not my issue. They chose to cut me out. It is their issue. It is a reflection on them. I don’t need people who treat people this way in my life. I choose to surround myself with people who understand and accept me.

When I socialised with others I either talked way too much (anxiety driven talking) or not at all. This depended on the amount of people I was interacting with at the time. One on one I talked a lot. In a big group I could not get the words to come out of my mouth no matter how much I wanted to say something. I have experienced this at different times in my life. Especially at school. School was tough. I was vulnerable to abuse because I was not able to speak up. It was isolating. If I am in a group of people I don't know well, e.g. a workshop. I will find it very difficult to speak and share my experiences. In school everyone thought I was shy because I didn't speak much but I wasn't shy. I just couldn't talk no matter how much I wanted to. I often had a lot to say but I couldn’t verbalise myself. I know now this as selective mutism. This has improved with age, confidence and maturity and understanding of how my brain works.

In Primary school, I cried easily over anything unexpected. I earnt the name 'cry baby'. I hated it. I had no control over my crying. It just spilled out of me uncontrollably whenever I felt overwhelmed and lost control of a situation. E.g. Playing tag with the other kids. I loved running away from the person who was 'it' but if I was tagged and became 'it' I would soon start crying because I couldn't catch anyone as I wasn't very fast. I took the game very seriously and personally, others would run away laughing and I would start to feel overwhelmed with emotions and start crying. I would feel left out and like I would never catch them and be 'it' forever so would just start crying (meltdown) instead. I soon got a reputation as a cry baby. Other kids were hesitant to let me play with them as a result. This further isolated me. I hated it. I wanted to belong but my big, intense emotions took over so start to cry. As I grew older I learnt to control my crying and hid it well. I don’t cry as easily now and wish I was able to.

I wasn't able to cope with driving, ever. It has always been mentally and emotionally exhausting for me. I would get highly anxious and confused whenever I attempted to drive in stressful situations. I have had driving lessons which helped me learn how to use the car but that didn't change my brain's response to too much stimuli and having to do many little actions with my body in a short amount of time. This means I can drive very well on a quiet country road with little traffic but I'm hopeless at driving when I try to drive in more stressful situations with lots of traffic.

I found the idea of full time work overwhelming and it filled me with anxiety. I knew I was intelligent and able to work but I didn't know how to work out how to fit a job into my life in a way I could cope with. I was very work avoidant. The part-time work I did do, I often found mindless and boring as soon as I learnt how to do it. I get bored easily. I have always wanted to work in something which engages me and where I never stop learning. I have no idea what type of work is for me yet. I am going to work out my career path. I found the social aspect of the work environment annoying and confusing. I was often left out of things as a result. This added to my anxiety and stress levels. It was partly for this reason I decided to become a Mother, because I did not know what else to do with myself. I felt I was useless to the world, that I had nothing to offer. I thought at least I would be able to be useful to one person, a child.

I became obsessed with getting pregnant. I was completely unprepared for how tough motherhood would be. I was naive and immature with a number of issues of my own. When I was not able to get pregnant easily I became even more obsessed and had meltdowns each month I did not get pregnant. I was so focused on getting pregnant, I did not think of anything else. I researched improving fertility and diet. I finally did get pregnant after a year of trying. Then I focused on researching birth and labour.

I researched and chose to have a homebirth. Which meant I had control over my labour environment and there were no strangers in my space. I remember feeling terrified and anxious at the thought of going to hospital and having to deal with strangers in my most vulnerable moments. I could not cope with the idea of going to hospital so researched intensely about homebirth and realised it was best for me and my child. I had two trained midwives present. Everything was fine for both my son and I.

The adjustment to motherhood was difficult and traumatic. Suddenly this tiny person needed me constantly, cried a lot, slept unpredictably and was messy. It was incredibly overwhelming and overstimulating. I did not know how to cope, somehow I survived those early years. I was highly anxious 95% of the time until my son was nearly 2. I was always on high alert. I could not relax, I did not allow myself to. I had no idea how to relax and wind down anyway. My son’s cries sent my anxiety sky high and there was no escaping his cries. I had to attend to him and calm him down whilst almost in a state of panic myself. It was extremely tough and overwhelming. I had no understanding of this within myself so was not able to communicate this with anyone. It was extremely lonely and isolating. I carried on in this high alert state for almost a year. The cracks started to show as I could not manage to keep myself together in such a high level of anxiety for so long. I was extremely irritable, stressed, anxious, depressed, suffered from insomnia and just could not cope with much. I was a mess. I went to see a therapist for PND. She did CBT with me and taught me about body relaxation. She was helpful but I realised after a time, I did not click with my therapist as well as I would like to. I felt she wasn’t really helping me either. She thought it was how I parented my son was the problem, which it was not. I knew instinctively it was something else and decided to stop seeing her. I saw another therapist. She wasn’t very helpful either. Her suggestion was to put my son in daycare to allow me time to myself, which in hindsight would have helped me but I was not open to the idea, yet. No one had taught me how to manage my stress and anxiety levels in a way which suited me. I, myself, did not realise what I needed, I just knew I needed some other type of support/help than what I had found thus far.

I was desperate. I was in such a bad place. I was not coping as a Mother at all. I was determined to find the right support. I knew there was something different about me as I have always felt different from others. I decided to read about Aspergers and females. My Mum had suspected I was on the spectrum for a while but I had been in denial about it for a few years. I finally accepted I might be on the Spectrum and read ‘Aspergirls’ by Rudy Simone. My life changed when I read her book. I no longer felt alone. My life made sense, finally!

I have many different stims I do, some are body stims, some are visual stims, some are motion stims, some are aural stims. I have been doing many of them my entire life. I learnt to hide my stims as I got older so when I first realised I was Autistic I had trouble trying to recognise if I stimmed at all. Now, I can see many things I do which are stims but are fairly hidden, most of the time. I am unlearning to hide them, to embrace them and do them when I need to.

I spent so much time analysing myself and wondering why I was so different. I worked so hard to improve myself and trying to be more aware of my limits so I could grow and improve myself. Yet I always fell short. I was so aware of the gap between myself and others. So aware of how much I struggled to do everyday things which seemed so effortless for others to do, yet difficult for me. I turned inwards on myself. Hating myself for how I was. Hating the fact I couldn't cope with things others could do. Hating the fact I always struggled to connect with people. I had very little confidence in myself and who I was. I was in a dark place. My diagnosis changed this. I began a journey of understanding, self awareness and self-acceptance. My diagnosis changed my life for the better.


I have been very open about my diagnosis with the people in my life, choosing to use my diagnosis as a way of helping others understand me. This often backfires unfortunately. People sometimes assume I'm using my diagnosis as an excuse for my supposedly bad and avoidant behaviour. What they don't realise is I was like this before my diagnosis. I'm diagnosed now and I finally understand myself. I have the knowledge to work out ways of helping myself to cope better and language to articulate myself to others. Self-acceptance has played a huge part in me being able to move forward as a whole, yet imperfect person.

The idea that I'm using my diagnosis as an excuse is irrelevant now. I realise just how much Autism coloured my life was prior to me even realising it.

I and other Autistic people need people to understand this. We don't need people assuming we are using our diagnosis as an excuse for our differences and behaviour. We need acceptance. We need understanding. We need support. The diagnosis and new understanding of oneself is an explanation, not an excuse.

I am aware some people may use Autism as an excuse for their behaviour but they don't need judgement. They need understanding. Perhaps they don't know how to cope better and need support for figuring out a better way. Perhaps they find change hard and overwhelming. Whatever the reason, telling an already vulnerable person who has likely spent years feeling alienated and different to stop using their diagnosis as an excuse is not supportive or empathetic at all.

When people tell me I am using Autism as an excuse or I need to try harder to overcome my disability, they don’t realise how ignorant they sound and how hard I have worked to become the person I am today and to cope as well as I do. It’s can be quite insulting and undermining to someone on their label acceptance journey but I believe a little understanding can go a long way.

Time blindness

I recently discovered a new term: time blindness. It perfectly describes my struggles with time management. My husband Atrus has similar struggles with time management too, we do compliment each other somewhat so it balances out a little.

I have time blindness. I lose track of time so easily. The pressure of adhering and following time causes me a lot of stress and anxiety. I really would prefer to live my life free of clocks, time and do things at my pace and when I can.


I have worked hard to figure out ways to cope with time blindness and am getting better at being on time. I realise I need a lot of time where I don't have anything scheduled or planned so I can cope with the times there is a lot more pressure on me. My anxiety is too severe and I get too worn out by having to constantly cope with outside pressures on me. I need uninterrupted down time to lose track of time as a rest period. I cope a lot better with time management when I have these times regularly.
I hugely struggle with time management. I have severe anxiety, asd, ADHD, depression and PTSD. I have always struggled to be on time, all my life. I have a love/hate relationship with time as it makes no sense to me to live by man made time rules. I find time confusing and stressful. I have no context of time when I don't have a clock or watch with me. I can't estimate how long things take. I do not wear a watch because having the time with me all the time causes me huge anxiety and I feel far too much pressure (too much pressure and performance anxiety means I fall apart with anxiety and crying if there is too much then nothing gets done and I have no more energy to get myself to whatever I'm trying to get to).

When I'm in the zone of getting ready, time ceases to exist as I'm so focused on getting ready and can get so easily distracted by things that need doing and I get obsessive about getting everything done before I leave the house. I hate leaving the kitchen in a mess (I'm getting better at letting the mess go and prioritizing being there on time). I have recently changed all our clocks to 10-15 min fast and then aim to leave 10-15 min before the time I need to be there on the 15 min fast clock which really means 30 mins earlier and I am finally having success in being on time to things. I have reminders on my phone for everything too, which helps. It's taken me till this year to mostly be on time. I don't work due to disability so that isn't an issue for me but I have been late to appointments or missed public transport because I under-estimated how long it would take me to get ready and how long it would take me to walk to wherever I need to (I don't drive due to anxiety). I'd arrive late, in tears and have a major anxiety attack in public (horrible and embarrassing experiences). I majorly struggle with executive function (dysfunction in my case) which is planning, organisation and making things happen. I am slowly improving with time management and being on time. It's important to me and I always feel like such a failure in life and a crappy person every time I'm late. I tend to beat myself up about it a lot and get depressed and anxious about it. But I'm trying so hard to find ways of being on time that work for me and being heaps kinder to myself about it when I am late (the lateness is happening a lot less). I'm learning.

I'm over 30 and a parent so it's been a life long learning curve for me to manage my time better.


Further reading:



On-line socialising

I have been musing about online socialising for quite awhile now. Mainstream society would have me not socialise online, they would have me out socialising in real life and getting worn out. I enjoy socialising in person with others but in small manageable doses. I need to manage my spoons/energy and keep my life in balance. I can only manage so much real-life socialising before I lose my balance in life.

Online socialising and women's Autism groups have really, really helped me grow as a person. I have learnt so much about myself and it has been a relief to know I am not the only one with similar struggles. Socialising in these groups has helped me to become more open-minded, understanding and empathetic of others' journeys. It has helped me to accept and embrace the diversity of the world, because even within the Autism community there is diversity because we ALL come from different backgrounds and upbringings. It is our unique neurology which binds us together, we are diverse in all other ways.

Prior to getting involved in autistic groups I was quite close-minded, rigid and immature. I was judgemental of others and why they did the things they did. I did not know how to treat others who were different to me. I have since learnt a lot about myself, others and how to treat others since socialising online. I now make an effort to try and understand why others do what they do and their journey of what led them to this point. I try so hard to be empathetic and understanding of others now and not judge. I still do judge, I am still close-minded at times, I still stereotype but I am far more aware of it in myself than I ever was. I question myself and learn from my mistakes. It was the online social interaction in ASD women's groups which really helped me to learn this. I learnt what to say or write by reading what others wrote in response to others experiencing tough times. I learnt other socially appropriate things to say and write too. Socialising online is a way of me scripting social situations so I am able to learn how to interact with others. I learnt how to treat people with respect and be caring, empathetic way. At the same time I was forming amazing friendships with other Autistic women.

I would never have been able to cope with meeting so many people from all over the world in real life. I would have been too overwhelmed, anxious and overstimulated. I would not have been able to hold a conversation. Online socialising is the way to go for me.

I remember when I first joined up to an Autistic women's group. I remember the hesitancy I felt about joining. I was so focused on the stigma, the stereotype about Autism that I was afraid of the journey. I remember spending months being unsure I was even Autistic. It was a difficult time but once I accepted my neurology I felt so much peace within. I got more involved in groups. It was amazing to realise there so many other women experienced similar struggles, joys, and understanding of the world.

I have so much more self-awareness now as a result and which will continue to grow.


I thank all the amazing people who I have socialised with online over the past few years. You have taught me so much more than I would ever learn socialising in person.


I thank them for their friendship, understanding and acceptance of my own journey

E - “I also feel that facebook has helped me to become less judgmental by exposing me to many different kinds of people from all over the world. It has also given me the opportunity to learn and practice social skills that I've never had the chance to practice in 'real life'. Some of those skills are now transferring into 'real life'. Being a co-admin of a small group has been the kind of experience I would never have had in real life.”


When I went to a self-care workshop recently. They were talking about how unhealthy it is to isolate yourself (I agree, to a point) and be stuck in a rut for ages. They were talking about how important it is to get out and socialise. It is important but I am not going to have energy (spoons) to socialise when I am depressed or really anxious. I have just come out of a major depressive episode and I could not easily connect with others, no matter how much I tried. Even online socialising was difficult for me. It was too hard to think of what to write or share in groups. I withdrew to heal. I would not have coped with forcing myself to socialise when I could barely get words out in written communication. I am tired of people telling me socialising online is bad. It is not. It has been the best thing for me and for many others I know online.


The self-care workshop was really good, helpful and informative but very NT and not very Autism friendly. There was a big emphasis on socialising and connecting with others to stop oneself from sinking into depression. When I get depressed I regress and can barely verbalise myself. Socialising is the last thing I want to do. I take other solo self-care steps to improve my mental health, such as exercise, reading, watching funny movies and spending time with my family.

I have experienced a few negative interactions online since I have gotten involved in the Autistic community, which is unfortunate but bound to happen. They were quite traumatic for me. I would perseverate on why it happened, what went wrong and how I could fix it. I was so hurt and confused. I spent hours crying over these bad experiences. The pain was intense. I did not get involved, I withdrew to protect myself. I ultimately wish everyone could get along but I have come to realise this will never happen. I will clash with some people, some won’t like me, this is just how it is. The negative experiences I've had have helped me to grow and become stronger in myself. It's helped me to understand boundaries and not be afraid to set them. It's helped me to stop worrying about offending others and doing what is best for me and my emotional health.


Online socialising has helped me to learn to take a step back from a situation and not take it personally. I try to evaluate what the other person might be going through, where they are coming from and try to have empathy for where they are coming from. By doing this I endeavour not to judge the person and their journey. If I am emotionally too close to the situation it is more difficult for me to take a step back and evaluate it rationally.

I don't usually take other peoples' behaviour personally either. I see it as a reflection on them and where they are at in their journey of life.

I remember writing an essay for University about on-line gaming and education. It was quite fascinating.

It completely changed my opinion about computer games. I believe this helped pave the way for my openness about on-line socialising. When I interact with others in person I try to use my social skills I have learnt through on-line socialising.

I have noticed there appears to be a stigma attached to on-line socialising. When I have told people about my experiences online (good and bad), they are quick to judge and tell me it’s not real, not to get so involved, to focus on reality. What they don’t realise is for the first time in my life, I feel I belong. I have found my people, my culture. While we may not all get on, there is still an overwhelming sense of belonging and acceptance.

These people do not realise for the for the first time I am able to learn social scripts in real time and at a pace which suits me.

As my one of my on-line friends M puts it so eloquently, ‘I like the solitude of body and communication of mind, so mostly social media is easy to use. If I need to, I can take a break and that’s okay.’

When I talk to others about my experiences on-line, I am often silenced, undermined and told it’s not real life. I have found this incredibly hurtful and insulting. I feel I am part of a different culture more so than ever when this happens. I try not to let it bother me anymore. I have found my version of normal and what works for me. It can be exhausting finding my own path, but it is very rewarding.

Quote from my essay (which I wrote for Uni in 2009).

A study was done on the game World of Warcraft, a massively multiplayer online role-

playing game (MMORPG), and the online community that supported and educated players in the playing of the game. The study showed that there are advantages to playing computer games, particularly online games where players from all over the world connect to play. Players form guilds with which they socialise, play, learn and support each other. The study found that the way players learned how to navigate the game could be used to improve student learning in the classroom (Nardie, Ly & Harris, 2007). In World of Warcraft players create a character with which to play, through this character players then “explore, fight, socialise, make money, take up professions, and advance through 60 levels of play. Playing the game is complicated, players need to develop strategy, find out numerous game facts and develop their character
through various ways. “Despite this, the manual that comes with the game is a slim 4x5 inch volume. No teacher, coaches or curriculum explain the game. None of the familiar supports of formal education are in evidence – but no one fails World of Warcraft” (Nardi, Ly & Harris, 2007).

Overall the advantages of computer games is they provide an alternate way of educating students, rather than using traditional methods. Games also can provide ideas for new ways of teaching. Some of the tag lines that games use are; “Create your own heroes, Engage… Challenging… Perform… lead… Don’t work alone” (Prensky, 2005). The games deliver these promises to players. This is not exactly a description of today’s classrooms.

Prensky believes what is lacking in education today is engagement in learning; computer games offer this. Students still have to go to school whether or not it is engaging and that is enraging them to push their teachers to do better by them (Prensky, 2005). “…Game cultures promote various types of information literacy, develop information seeking habits and production practices (like writing), and require good old fashioned research skills,” (Squire, 2005).

Whilst the quotes focus on on-line gaming in education. These quotes echo a similar dynamic which is portrayed through my experiences with on-line socialising.

References:


Prensky, M. (2002). The Motivation of Gameplay. On the Horizion, 10(1),


Nardi, B., Ly, S., & Harris, J. (2007). Learning conversations in World of Warcraft. University of California, Irvine: Author.

Squire, K & Steinkuehler, C. (2005). Meet the Gamers. Library Journal, 130, (7), 38-41.

Friday, 9 October 2015

I'm back from my hiatus.

Potential trigger warning for abuse and religion.

It has been 6 months since I last wrote in my blog. I have been going through a really difficult time the past 6 months. Lots of triggery crappy stuff happened. I had yet another professional treat me badly and try to bully me. It was a horrible and terrifying experience! My mental health issues got a lot worse and I had to go back on medication. I withdrew into my little cocoon and let go of a lot of things, including writing.  I was also falling into the comparison trap again, thinking I am not good enough because I am not doing all the things, then I started beating myself up about it and getting upset because I am not successful and able to live my dreams. It was upsetting and soul-destroying.  Everything got too much for me. So it was back to bare minimum mode in order to cope and survive. I did a lot of thinking, reading and learning in this time and I feel ready to do some writing again. 

Lots of past traumas came up in my hiatus from writing and I started to accept and realise that I have C-PTSD and need to do something about it to help myself. I am now in the process of being assessed for PTSD. It has been incredibly triggering for me to find the strength and courage to seek out yet another professional due to the horrific traumatic experiences I have been the victim of in the past due to abusive professionals. The abuse from a number of professionals has compounded my C-PTSD from my childhood and made it worse. It has taken me till a couple of months ago to come to terms with the C-PTSD, on some level I knew I have PTSD and have been doing reading about it for a couple of years, but it was only until a couple of months ago when everything was getting worse for me and so many things were triggering me that I started to really look into PTSD and start to process what PTSD meant for me. It was overwhelming as a lot of stuff came up as I started to really explore what PTSD meant for me. I chatted to a couple of friends about it online and discussed it in one of the fantastic autistic women's group I am. Talking about it with others really helped me start to accept and validate myself in terms of PTSD. I began to realise my struggles were much more than being Autistic. I worked up the courage to go and see a clinical psychologist who assesses for PTSD, it was triggering and difficult to do, but I did it. I am really glad I went to see this psychologist as they are really different to any other psychologist I have been to. They are very respectful, meet me where I am at and works with me. They appear to have no agenda either. It is a relief after all the crap I have been through with previous crappy and abusive professionals. I just had my second session with them and am due for another in 2 weeks time.

For so long I have beat myself up over a lot of traumatic stuff that has happened to me and blamed myself for it. In fact I recently realised that really struggle not to blame myself for everything that goes wrong in my life or interactions with others. I realised I have been blamed a lot in my life when I was growing up, everything that went wrong in my family or with my siblings was pretty much seen as my fault, by my parents or siblings. I was the scape goat. My Mum recently told me about my Dad picking on me when I was growing up, he was much harder on me than my two younger siblings. I don't remember this, but it obviously affected me a lot. I am now dealing with the after-effects of past abuse and constant blame from others. My default reaction is to blame myself for everything when it goes wrong. I am working on trying not to blame myself so much and let go of things which are not my issue, but it is a real challenge for me. The blame on myself has led to me internalising a lot of crap from others which I didn't need to take on. I can see this has added to my anxiety in a severe debilitating way. I really struggle with interactions with other people now because I tend to pick up on the slightest vibe that something might be wrong and start trying to figure out what I have done wrong. I used to try and fix it but it often made things worse. I ended up being a doormat putting up with whatever abuse came my way from others and had no way of being able to say no or stop. It was terrifying because I felt trapped in those situations. Being raised a Christian I took the Bible verses about turning the other cheek, the Golden rule and heaping coals of fire on one's enemies head very literally. I thought I had to be super nice, caring, kind and mean people would leave me alone or it would somehow turn them nice towards me. What a load of utter crap! It never did, instead it left me an easy target open to any type of abuse, which was horrible and confusing because I kept trying to practice these verses with no success. It is now really hard for me to know when I have really done something wrong or if I am taking on someone else's issues which are not mine and making it into my issue, then trying to fix the problem in the relationship or friendship. This led to me struggling with boundaries. I never knew I could say no to things, I thought I had to accept everything others said or did without question and just go along with it because I never knew I had any say. It was only recently I learnt that I was able to say no and not feel bad about or blaming myself for saying no. I am improving with boundaries, in particular on-line. 

I have recently unfriended a few people from my past for being rude and disrespecting of my boundaries. It was very difficult for me to do and the experiences were very triggering, but I did it and I feel so much better and safer on my profile. I am really proud of myself for setting boundaries and sticking to them. I realised that being able to set boundaries and practice being assertive on-line in written form is a lot easier for me to begin with as it is easier for me to process what is happening in real time. I struggle to process verbal input which means it takes me longer to process it and figure out what is really being said. I can so easily be taken advantage of in real life verbal social interactions. When I am on-line I have the safety of being in my own home and can so easily walk away from my computer or phone and do something else, leaving the difficult triggering situation to fester away on it's own allowing me the time I need to process how I feel about it, figure out what my boundaries are and what I need to write in response. I do not get this option when I am interacting with people face to face verbally. The pressure to respond and keep the flow of conversation going becomes too much in those situations and I am unable to allow myself the time I need to process and respond as I need to. I can so easily end up trapped in a situation I do not want to be in, unable to get the words out that I need to in order to put up boundaries and get away. Those situations are terrifying for me. I am hugely grateful for on-line socialising as it helps me learn about boundaries and practice being assertive in a way and at a pace which suits me. 




[Image is on a dark purple background with a rainbow winged cicada in the right hand corner with the words 'Resplendently Autistic' underneath it.
It has the text 'I have realised I need to be harsh about what I tolerate in my life and remove myself from toxic, triggering people/situations because the detriment to my mental health is not worth it. The old me would have felt tremendous guilt about doing this, worrying about hurting the other person's feelings, but now I feel relief because I have the power to walk away and liberate myself from toxicity and triggering situations. It is a relief!

~ Kezza.' on it.

I have realised I need to be harsh about what I tolerate in my life and remove myself from toxic, triggering people/situations because the detriment to my mental health is not worth it. The old me would have felt tremendous guilt about doing this, worrying about hurting the other person's feelings, but now I feel relief because I have the power to walk away and liberate myself from toxicity and triggering situations. It is a relief! I no longer take on other people's crap and try to fix it, in the first moment I do because it is my default reaction, but when I think about it and analyse what I think/feel about it, I get angry or  feel hurt by yet another abusive triggering situation and need to keep myself safe by putting up boundaries. It is in that moment that I know I can walk away.

Saturday, 4 April 2015

Fear of living

For a long time I have had a fear of living my life. I have always had a lot of fears since I can remember as a very young child. These have changed as I got older. 

I experienced this feeling that I didn't deserve to have a happy, fulfilling life, I believed it was for everyone else. I don't know where I got this idea from. I have felt this way for most of my life, it got worse as I got older and noticed that most other people were very driven and all about appearing successful in life. I thought I had to do xyz before I could really live and be happy. I kept trying to be what I thought was successful, kept pushing myself, would get overwhelmed and worn out. I would beat myself up for not being able to manage as well as others seemed to. I withdrew a lot after I was married for a few reasons regarding how I was treated by some family members. I had my degree as was expected of me, I was married as was expected of me, then I thought now what? I didn't know how to live or what to do with myself. I had this feeling that I didn't deserve to really live or be happy so I hid myself away from the world because it was so overwhelming and difficult to navigate. I did not understand myself, I was not diagnosed, I had little self-awareness or understanding of myself. I felt isolated and disconnected. I had friends but it didn't seem real and I didn't believe they really liked me or that I had much to offer in friendships. I had very low confidence, self-esteem, hated myself, thought I was not intelligent and thought I was a failure at life. I knew I was different to most other people due to my difficulties but did not know why. I turned this onto myself. I believed I was defective. Nothing felt real, for a long time. I was very depressed and anxious. It was a horrible place to be.

My diagnosis was a relief and changed how I viewed myself

Due to all of this working against me until recently, I have not felt I have really enjoyed living or allowed myself to live and be happy until recently. I look back on my life, the person I was and feel sad for the lost opportunities, friendships, and happiness.

I look at my life now and cannot believe how different it is, how different I am, how much I have changed and grown. I do not see myself as I used to at all, as defective, broken, and a failure. I am working on accepting myself as I am and being at peace with the journey I am on. I made a decision recently to really live my life, to enjoy it, to make the most of life and not be afraid to live. It feels good. I feel so much happier than I have ever been. The fear of living and the feeling that I don't deserve to be happy creeps back from time to time but it does not have power over me like it used to. I am looking forward to making the most of my life, living my life in a way that suits me, instead of living in fear. 

Wednesday, 1 April 2015

Writing process

My writing process.


I think of an idea. Inspiration comes to me in all sorts of places and situations. I start writing notes and thoughts about the idea. Ideas come swift and quickly. It can be overwhelming as I find it difficult to write fast enough to keep up with my thoughts. I have an intense need to write and get all my of ideas out in words to refer to later when I am at the idea phase. I usually type one handed on my phone to write all my ideas out, it is what I find easiest to do, especially if I am in the midst of other stuff I am trying to deal as well. It helps to have a portable way to record my ideas. I find it easier than physical writing with pen and paper. I forget to carry pen and paper around with me. It can be tiresome typying one handed though. I have written almost entire blog posts one handed on my phone because I was in not in a place to use my computer. I hate interruptions when I am at this phase of my writing as interruptions throw me off my momentum of thoughts and I lose ideas to add to my writing. It is frustrating, but that is my life as a Mother. I do my best despite my life situation.

Once I start writing about my idea, it always turns into a far more complex piece of writing than I anticipated. Ideas and connections come in layers and layers of thoughts. It is difficult for me to keep my writing succinct and to the point as I can see so many connections and ideas that work with my original idea in my mind. I need to give myself time to process my idea and think of ideas and memories that will add to my writing idea. I find I think of a lot of ideas as I go about my daily routine and I will add sentences and notes on my phone as I am doing housework or parenting. This means my original inspiration and motivation to write is lost once I have gotten back into the daily routine of life. It is hard to find that momentum for my original idea again after a few weeks. I am trying really hard to stick to my writing, am working on completing all my draft posts. Instead of writing new blog posts and never finishing them (except this one). I have 14 draft posts to date. I have printed my draft posts out to read over, proofread, edit and add more ideas/sentences. They are all in a folder which I work on when I can. I find myself getting stuck on words and finding the flow of my writing again. I find myself getting triggered, upset and anxious over what I am writing about, which wears me out and makes it difficult to keep writing. I find I can only write in short inspirational bursts, and then make time to complete writing what I started over time. If I don't get time to work on my blog posts I get frustrated because I don't think I am writing enough (blog post to come about this topic). I am trying to be kinder to myself and write in a way which best for me and not worry if I am writing enough. In time there will be more blog posts to read of all the ideas I am working on. Stay tuned, more to come.